Uplifting Athletes Announces Horizon Therapeutics plc as Exclusive Sponsor to Help Tackle Rare Disease at the National Footba...
February 11 2020 - 8:00AM
Business Wire
-- NFL Draft Prospects Participating in ‘Reps
for Rare Disease’ Will Help Raise Funds for Research and Awareness
Programs --
-- Horizon will match Pledged Donations Through
the Company’s #RAREis Program --
Horizon Therapeutics plc (Nasdaq: HZNP) and Uplifting Athletes
today announced a new partnership for the 2020 Reps for Rare
Disease campaign, which offers an opportunity for NFL Draft
prospects to give back and support the rare disease community.
Participants who team up with Uplifting Athletes will dedicate
their performance in one event – bench press, vertical jump or
broad jump – at the NFL Scouting Combine or their school’s official
pro day, to raising funds for rare disease research and awareness
initiatives.
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the full release here:
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Donations can be made at each athlete’s individual Pledge It
page and benefit Uplifting Athletes, an organization who inspires
and develops champions for rare diseases through sport. Horizon
will match donations up to $35,000 through its #RAREis program,
which is dedicated to providing individuals living with rare
disease and families access to resources that connect, inform and
educate as they navigate their daily lives.
“As a rare disease patient and an athlete, sports have played an
integral role in raising awareness for rare diseases,” said Rob
Long, executive director, Uplifting Athletes. “Horizon’s support
enables us to further our mission by engaging more athletes to have
a greater impact on the rare disease community this NFL Draft
season. It gives hope to the 25 to 30 million Americans impacted by
rare disease.”
There are more than 7,000 known rare diseases and less than five
percent have U.S. Food and Drug Administration approved treatment
options. Reps for Rare Disease brings together the rare disease and
athletic community to increase awareness and to ultimately raise
funds that will further research for new medicines to address the
high unmet needs in rare disease.
“As a company that is deeply committed to the rare disease
community, we look to partner on creative campaigns that engage
more people in understanding rare diseases and further research
efforts,” said Matt Flesch, vice president, communications and
patient advocacy, Horizon. “This partnership with Uplifting
Athletes complements our #RAREis program, enabling us to work
together to call attention to and support the many faces, voices
and experiences of the rare disease community among a broader
audience.”
Uplifting Athletes’ Reps for Rare Disease raised more than
$45,000 in 2019, with 56 participants from 21 Division I football
programs. Already, more than 50 athletes have joined the 2020
campaign.
Fans and the community can pledge their support to an athlete
with a specific dollar amount for every rep completed or inch
jumped in the selected activity. Each supporter’s total
contribution is determined by the number of reps completed or
inches jumped in the player’s combine performance or official pro
day workout. All funds raised will support Uplifting Athletes’
mission to inspire the rare disease community with hope through the
power of sport and fund research, awareness and leadership
programs.
To learn more about the Reps for Rare Disease program and the
participating athletes, visit the Uplifting Athletes website,
www.UpliftingAthletes.org.
About Uplifting Athletes
Founded in 2007, Uplifting Athletes fulfills its mission to
inspire the Rare Disease Community with hope through the power of
sport with a powerful network of over 20 college football
student-athlete led chapters, Uplifting Ambassadors and Team UA
participants. Since its inception, Uplifting Athletes has raised
more than $5 million to support the mission of Uplifting Athletes
and its charitable programs: Rare Disease Awareness, Rare Disease
Research, Uplifting Experiences and Uplifting Leaders.
About #RAREis
In February of 2017, Horizon launched the #RAREis program aimed
at elevating the voices, faces and experiences of people living
with rare diseases, as well as highlight programs and resources for
the rare disease community. The program is anchored by an Instagram
page and website that showcases photos and stories of people
touched by rare disease and captures elements of their patient,
caregiver or advocate experience. To learn more, visit the #RAREis
Instagram page and visit the website at
www.RAREisCommunity.com.
About Horizon
Horizon is focused on researching, developing and
commercializing medicines that address critical needs for people
impacted by rare and rheumatic diseases. Our pipeline is
purposeful: we apply scientific expertise and courage to bring
clinically meaningful therapies to patients. We believe science and
compassion must work together to transform lives. For more
information on how we go to incredible lengths to impact lives,
please visit www.horizontherapeutics.com, follow us @HorizonNews on
Twitter, like us on Facebook or explore career opportunities on
LinkedIn.
View source
version on businesswire.com: https://www.businesswire.com/news/home/20200211005281/en/
U.S. Media Contact: Michelle Rivas Manager, Rare
Disease Communications and Social Media
media@horizontherapeutics.com
Ireland Media Contact: Gordon MRM Ray Gordon
ray@gordonmrm.ie
Uplifting Athletes: Brett Brackett
brett.brackett@upliftingathletes.org
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