APDA is committed to reaching and supporting more people with
Parkinson's disease.
NEW YORK ,
June 24,
2024 /PRNewswire-PRWeb/ -- The mission of
the American Parkinson Disease Association (APDA) is to
provide the support, education, and research to help everyone
impacted by Parkinson's disease (PD) live life to the fullest. To
promote health equality and access to care, education, and support
for all those affected by this disease, APDA is committed to
expanding its reach to under-served, under-studied and
under-represented communities. The organization's latest step in
this direction is the launch of two newly transcreated resources –
their Walking You Through Parkinson's Disease webinar and Be Active
& Beyond exercise guide – which are now available in Mandarin
and Simplified Chinese, respectively. Both resources can be viewed
on APDA's website, and the Be Active & Beyond exercise guide
can also be mailed as a hard copy, all free of charge.
"We are so pleased to add these key
resources to our library as the next step in better serving the
Chinese community," states Leslie A.
Chambers, President & CEO, APDA.
"We are so pleased to add these key resources to our library as
the next step in better serving the Chinese community," states
Leslie A. Chambers, President &
CEO, APDA. "Everyone deserves the same level of care and support,
but when there is a language barrier it can be challenging to get
access to the information you need to understand your diagnosis, to
feel empowered, and to make decisions about your treatment plan.
There is a severe lack of credible Parkinson's disease information
available to those who speak Chinese, and we are eager to correct
this as much as we can now and moving forward."
APDA's Walking You Through Parkinson's Disease webinar is an
essential starting point for those who are newly diagnosed or
anyone who is looking to learn more about PD. It provides a
comprehensive overview of PD, including an explanation of the
disease, common symptoms, available treatments for disease
management, practical tips on caring for someone with PD, research
currently underway, and more.
Research shows that exercise is a vital component of PD
treatment. APDA's Be Active & Beyond exercise guide provides
timely information on exercises designed specifically for people
with PD. It includes a daily exercise program complete with
step-by-step instructions with images for clarity, as well as an
exercise log to help track efforts. The guide provides the
information and tools that will get you started, or keep you going,
on your journey toward improved wellness.
These two new resources join those previously transcreated by
APDA for the Chinese community:
- The APDA Parkinson's Disease Handbook can be thought of as the
written counterpart of APDA's Walking You Through Parkinson's
Disease webinar. It is a reliable reference guide for those seeking
a comprehensive overview of PD.
To ensure that their Chinese resources are accurately translated
and culturally relevant, APDA enlists the help of several medical
experts and staff who are fluent in the language. Dr. Tao Xie, a
movement disorders neurologist at the University of Chicago Medical Center and the
Medical Director of the University of
Chicago APDA Information & Referral Center, has played a
key role. He has stated, "many Chinese patients with Parkinson's
disease may find it difficult to fully understand the complexity of
the disease and various terminologies in English. Their access to
specialty care may not always be possible and their questions
related to Parkinson's disease may not be always properly answered.
These resources break the language and terminology barriers,
bringing up-to-date expert information to Chinese-speaking members
of the Parkinson's community. This helps them to better understand
the disease features, and its diagnosis and treatment, and connect
them to the people and organizations who care about them and will
support them so they can live life to the fullest."
In addition to these resources, APDA recently partnered with
some of the Chinese researchers whose PD-related projects APDA has
funded to discuss their work in Mandarin-spoken videos. These
videos will help more people understand the exciting work being
done in the realm of PD research and can provide hope and optimism
regarding the future of PD:
- Digital Biomarkers for Monitoring Parkinson's Disease: Dr.
Yuanfang Guan, associate professor
at the University of Michigan,
discusses how her team's innovative approach to signal processing –
at the intersection of machine learning and PD – is paving the way
for early detection and objective evaluation of disease
progression.
Through its nationwide network of Chapters and Information &
Referral Centers, along with an extensive array of virtual
resources and programming, APDA helps people along every step of
their PD journey. By continuing to create resources in additional
languages – including Mandarin/Simplified Chinese and Spanish to
date – they can expand their reach, serving and supporting more and
more people impacted by PD.
For more information about APDA programs, services, support, and
PD research, visit http://www.apdaparkinson.org, call 800-223-2732,
or email apda@apdaparkinson.org. For those seeking support in
Mandarin, please send an email and a Mandarin speaking team member
will get in touch.
About the American Parkinson Disease Association:
The American Parkinson Disease Association (APDA) is a nationwide
grassroots network dedicated to fighting Parkinson's disease (PD)
and works tirelessly to assist the more than one million people
with PD in the United States live
life to the fullest in the face of this chronic, neurological
disorder. Founded in 1961, APDA has raised and invested more than
$282 million to provide outstanding
patient services and educational programs, elevate public awareness
about the disease, and support research designed to unlock the
mysteries of PD and end this disease. To join us in the fight
against Parkinson's disease and to learn more about the support
APDA provides nationally through our network of Chapters and
Information & Referral (I&R) Centers, as well as our
national Research Program and Centers for Advanced Research, please
visit us at http://www.apdaparkinson.org.
Media Contact
Eloise Caggiano, American
Parkinson Disease Association, 718-737-8151,
ecaggiano@apdaparkinson.org, www.apdaparkinson.org
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SOURCE American Parkinson Disease Association