NEW YORK and SAN DIEGO, June 25,
2019 /PRNewswire/ -- The Michael J. Fox Foundation for
Parkinson's Research (MJFF) and ACADIA Pharmaceuticals announce the
launch of "Parkinson's IQ + You," a series of local events across
the United States in 2019 and 2020
to educate and empower patients and their care partners.
"Between its symptoms and progression, Parkinson's can present
unique challenges for those of us who live with the disease, but
also for our loved ones who support us," said John L. Lipp, writer, nonprofit Executive
Director and person with Parkinson's. "I often say, 'I can't
control my Parkinson's, but I can control how I respond to it.'
Parkinson's IQ + You will offer people in the community, including
me and my husband, an opportunity to learn from other patients and
families and from experts in the field, so that we can turn
education today into action tomorrow."
Parkinson's IQ + You will host live events to support
Parkinson's families in learning more about the disease, the
elements of a comprehensive care team, communication between
patients and their doctors, the latest PD treatments and those in
development, and the value of participating in clinical studies.
The national event series is committed to amplifying a wide range
of panel participants, including patients and their care partners,
to reflect diverse representation from within the Parkinson's
community as well as the variability of the disease itself. In
addition to the interactive programming, each event will host a
Parkinson's Partner Expo of tailored resources to draw connections
within the local community.
"Patients are the force driving our research priorities and our
urgent mission to end Parkinson's," said Todd Sherer, PhD, MJFF's chief executive
officer. "The Foundation is committed to ensuring all people with
Parkinson's, and their families, are empowered to make decisions
about treatment and care. And we want to work side-by-side in
partnership with patients to advance Parkinson's research."
Community Events Coming to a City near You
Parkinson's IQ + You will visit multiple cities across
the United States in 2019 and
2020, bringing full-day events and a Parkinson's Partner Expo
connecting participants with local community resources. The event
is designed to support Parkinson's patients at every stage of
disease and their care partners. Free registration, which includes
complimentary breakfast and lunch, is available at
michaeljfox.org/PDIQ. The 2019 events will be hosted by
Larry Gifford, a person with
Parkinson's and podcast host of "When Life Gives You
Parkinson's."
Confirmed events are as follows:
- Atlanta, Georgia:
Saturday, September 14
- Southern California:
Saturday, December 14
- Phoenix, Arizona:
Saturday, January 11
Events will include interactive panels and sessions on
understanding Parkinson's, living well with the disease, the latest
updates on research advances and how to get involved in clinical
research. During "If I Knew Then What I Know Now," a patient and
care partner will share their personal strategies and anecdotes on
living well with PD from diagnosis onward. To illustrate the
breadth of medical professionals who treat all aspect of
Parkinson's, "Building Your Care Team" will equip the audience with
actions they can take to build the right team of experts to care
for body and mind. Each event will also feature "Seeing a Movement
Disorder Specialist," a live demonstration of a typical appointment
with a clinician to share insights on the benefits of seeing a
specialist, what to expect and how to make the most of a doctor's
appointment.
Staffed throughout the day, the Parkinson's Partner Expo will
gather local resources including healthcare providers from movement
disorder centers, physical and speech therapists, clinical trial
teams and representatives from support and advocacy groups. The
Expo will also unite national Parkinson's organizations to serve
patients and families with in-person opportunities to learn the
latest information on the disease, tools to optimize care and ways
to engage with the community. Parkinson's IQ + You will benefit
from the contributions of the American Parkinson Disease
Association, Caregiver Action Network, CurePSP, Inc., Davis Phinney
Foundation for Parkinson's, The Parkinson Alliance, Parkinson's
Foundation and Parkinson's Unity Walk, who will all be present
during the Expo.
Serving the Parkinson's Community through Education
The Michael J. Fox Foundation, with support from the Parkinson's
Disease Education Consortium, is committed to educating patients
and families on the disease and empowering the entire community to
take part in clinical research and help accelerate new Parkinson's
breakthroughs.
Funding for Parkinson's IQ + You is provided by members of
MJFF's Parkinson's Disease Education Consortium, including ACADIA
Pharmaceuticals, Acorda Therapeutics, Adamas Pharmaceuticals,
Amneal Pharmaceuticals, GE Healthcare, Kyowa Kirin, Lundbeck,
Neurocrine Biosciences, Sunovion Pharmaceuticals, US WorldMeds and
Voyager Therapeutics. This alliance of biotechnology and
pharmaceutical firms shares the Foundation's commitment to
furnishing high-quality educational resources for the Parkinson's
community.
"We are honored to collaborate with The Michael J. Fox
Foundation on this important project to advance education and
better care for people with Parkinson's disease and their
caregivers," said Rob Kaper, MD,
senior vice president, global head of medical affairs at ACADIA
Pharmaceuticals. "The Parkinson's IQ + You program has been
uniquely designed to bring much needed support and information to
the Parkinson's community. We look forward to this national series
of events across the country, which will offer attendees the
opportunity to interact with healthcare experts and other people
with Parkinson's and their families and ask important questions
about disease management."
About The Michael J. Fox Foundation for Parkinson's
Research
As the world's largest nonprofit funder of
Parkinson's research, The Michael J. Fox Foundation is dedicated to
accelerating a cure for Parkinson's disease and improved therapies
for those living with the condition today. The Foundation pursues
its goals through an aggressively funded, highly targeted research
program coupled with active global engagement of scientists,
Parkinson's patients, business leaders, clinical trial
participants, donors and volunteers. In addition to funding more
than $850 million in research to
date, the Foundation has fundamentally altered the trajectory of
progress toward a cure. Operating at the hub of worldwide
Parkinson's research, the Foundation forges groundbreaking
collaborations with industry leaders, academic scientists and
government research funders; increases the flow of participants
into Parkinson's disease clinical trials with its online tool, Fox
Trial Finder; promotes Parkinson's awareness through high-profile
advocacy, events and outreach; and coordinates the grassroots
involvement of thousands of Team Fox members around the world.
For more information, visit us on the web, Facebook, Twitter,
and LinkedIn.
About ACADIA Pharmaceuticals
ACADIA (NASDAQ: ACAD) is a biopharmaceutical company focused on
the development and commercialization of innovative medicines to
address unmet medical needs in central nervous system disorders.
ACADIA has developed and commercialized a treatment for
hallucinations and delusions associated with Parkinson's disease
psychosis. ACADIA also has ongoing clinical development efforts in
additional areas with significant unmet need, including
dementia-related psychosis, schizophrenia inadequate response,
schizophrenia-negative symptoms, major depressive disorder, and
Rett syndrome. This press release and further information about
ACADIA can be found at: www.acadia-pharm.com.
View original content to download
multimedia:http://www.prnewswire.com/news-releases/new-national-event-series-parkinsons-iq--you-launches-to-educate-and-empower-parkinsons-disease-patients-and-care-partners-300874152.html
SOURCE The Michael J. Fox Foundation for Parkinson’s Research;
ACADIA Pharmaceuticals