Adamas Launches “Picture More Time” Campaign to Raise Awareness & Understanding of the Impact of OFF Time & Dyskinesia fo...
April 27 2021 - 9:15AM
Business Wire
- Results of a survey co-sponsored by PMD
Alliance and Adamas showed the need for education in the
Parkinson’s community about OFF time and dyskinesia -
- Disease education program provides resources
for Parkinson’s patients experiencing motor complications -
Adamas Pharmaceuticals, Inc. (Nasdaq: ADMS), a company dedicated
to developing and delivering medicines that make a meaningful
difference to people affected by neurological diseases, today
announced the launch of “Picture More Time,” a disease education
campaign focused on raising awareness and understanding of OFF time
and dyskinesia and the emotional and social impacts these motor
complications have on people with Parkinson’s disease (PD) and
their care partners.
In partnership with the Parkinson & Movement Disorder
Alliance (PMD Alliance), Adamas co-sponsored a survey with 775
respondents, including 527 people with PD and 248 care partners.
Seventy-eight percent of those surveyed reported an incomplete
understanding of OFF time and dyskinesia.
The results also showed that people with PD and care partners
find these motor complications challenging, as well as stigmatizing
and socially disabling. Specifically, they reported:
- Experiencing discomfort in daily tasks such as driving or
carrying a grandchild: 51% of people with PD who had dyskinesia and
OFF indicated that the impact of dyskinesia made them uncomfortable
or nervous in some activities, such as carrying a grandchild.
Similarly, 64% of care partner respondents reported that watching
their partner experiencing OFF or dyskinesia made them
uncomfortable or nervous when their loved one engages in everyday
activities.
- Disruption to their hobbies and social activities: 49% of
people with PD reported the impact of dyskinesia stopped them from
doing hobbies and/or made them less likely to be social with
friends.
- Feeling socially isolated and lonely: 41% of people with PD
reported that motor complications felt socially isolating and made
them feel lonely. Correspondingly, 34% of care partners surveyed
reported the impact of motor complications made them and their
loved one feel isolated and lonely.
As a result of these findings, Adamas launched an educational
resource www.PictureMoreTimePD.com to help patients and care
partners identify and understand OFF and dyskinesia PD motor
complications, as well as the emotional and social impact they may
have on everyday activities and gatherings.
“We are proud to have supported this survey, which highlights
the need for better understanding of the impact of PD motor
complications, not only from the perspective of the person with
Parkinson’s, but also from the care partner perspective,” said
Sarah Jones, CEO, PMD Alliance. “The survey results indicate that
the care partner is very much affected by their partner’s gradual
withdrawal from public outings and social engagements as PD motor
complications worsen. We believe in challenging the status quo and
feel confident that this comprehensive disease education program
from Adamas will empower people with Parkinson’s as well as their
care partners to talk with their physicians in pursuit of better
motor control and emotional well-being.”
“We heard loud and clear from the Parkinson’s community that
there remains confusion about OFF, dyskinesia, and the impact these
debilitating motor complications may have on someone with PD and
their care partner,” said Adrian Quartel, M.D., Chief Medical
Officer, Adamas. “By offering these educational resources, our goal
is that people with PD and their care partners are equipped to work
with their doctors to maximize good movement control so they may
have an active and socially-connected lifestyle.”
Resources available on the Picture More Time website include
information on OFF and dyskinesia motor complications, a guide to
enable productive conversations with physicians and healthcare
providers, PD support group discussion guides, and other materials
to support people with PD, their families, and their care partners.
To learn more, visit www.PictureMoreTimePD.com.
About Parkinson’s disease, OFF and dyskinesia
Parkinson’s disease (PD) is a progressive, neurodegenerative
disorder caused by the gradual loss of brain cells that produce the
neurotransmitter dopamine and affects approximately one million
people in the United States. Dopamine decline in the brain results
in a wide range of motor (movement-related) and non-motor symptoms.
As the disease progresses, people taking levodopa-based therapy are
likely to experience reemergence or sudden return of stiffness,
rigidity and tremors, referred to as OFF episodes between
medication doses, that may be unpredictable. The primary treatment
for PD is with levodopa; however, over time levodopa may lead to
involuntary, uncontrolled movements known as dyskinesia. The abrupt
and unpredictable transitions between episodes of dyskinesia,
normal movement, and OFF lead to considerable impact on patients’
lives.
About Parkinson & Movement Disorder Alliance
Parkinson & Movement Disorder Alliance is an independent,
national nonprofit dedicated to providing opportunities for people
to learn, live more fully and spark meaningful connections around
them. PMD Alliance serves people across the United States and is
not affiliated with any medical practice or institution. PMD
Alliance is committed to keeping our community safe and healthy. To
learn more about the organization visit www.PMDAlliance.org.
About Adamas
At Adamas, our vision is clear – to deliver innovative medicines
that reduce the burden of neurological diseases on patients,
caregivers, and society. We are a fully integrated company focused
on growing a portfolio of therapies to address a range of
neurological diseases. For more information, please visit
www.adamaspharma.com.
Source: Adamas Pharmaceuticals, Inc.
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version on businesswire.com: https://www.businesswire.com/news/home/20210427005311/en/
Sarah Mathieson Vice President of Corporate Communications
510-450-3528 smathieson@adamaspharma.com
Amanda Nelson Manager, Public Relations at PMD Alliance
520-664-7951 amanda@pmdalliance.org
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