Horizon Therapeutics plc CEO Tim Walbert Honored with RARE Champion Award at Global Genes Champions of Hope Gala
November 13 2020 - 8:00AM
Business Wire
Horizon Therapeutics plc (Nasdaq: HZNP) today announced that Tim
Walbert, chairman, president and chief executive officer, has been
honored with the 2020 RARE Champion of Hope Industry Partner award
by Global Genes, a nonprofit organization that connects, empowers
and inspires the rare disease community. Tim received the award at
the virtual Global Genes Champions of Hope gala for his leadership
in and dedication to the rare disease community, as well as his
work advancing therapeutic options and care for people living with
rare diseases.
“As someone who lives with a rare disease, cares for a child
with a rare disease and has dedicated my professional career to
advocating for people living with rare disease, I am humbled to
receive this award,” said Walbert. “At Horizon, in addition to
delivering breakthrough medicines to those in need, we are equally
committed to building communities and raising awareness in the most
isolated or overlooked rare disease communities. Our incredible
team and I are focused every day on making a lasting impact through
science, compassion and collaboration.”
Global Genes’ RARE Champion of Hope award celebrates
individuals, organizations and collaborations that are the
groundbreakers, leaders and advocates who inspire and catalyze
change in rare disease. The Industry Partner award highlights the
collaborative efforts in engaging with rare disease communities and
stakeholders while driving change for therapies in the rare disease
space.
“Every year, we seek to recognize the individuals and
organizations that inspire us to do more and impact rare disease
families around the globe,” said Craig Martin, Global Genes interim
CEO, board member and RARE Corporate Alliance Co-Chair. “Tim brings
his personal experience to Horizon and has created an inspired and
motivated company which continues to advance science and address
gaps in rare disease awareness and care.”
Also at the RARE Champion of Hope gala, Horizon’s #RAREis
Playlist partnership with Sing Me A Story was featured through a
musical presentation from singer and songwriter Kat Perkins,
performing a song adapted from a story written by a child about
living with Tuberous Sclerosis Complex, a rare genetic disorder
that causes tumors to form in many different organs, primarily in
the brain, eyes, heart, kidney, skin and lungs.
To learn more about the 2020 RARE Champion of Hope awardees,
visit the Global Genes website.
About Global Genes® Global Genes is a 501(c)(3) nonprofit
organization that connects, empowers and inspires the rare disease
community, with the ultimate goal of eliminating the burdens of
rare disease for patients and families everywhere. We provide hope
for the more than 400 million people affected by rare disease
around the globe. We fulfill our mission by helping patients find
and build communities, gain access to information and resources,
connect to researchers, clinicians, industry, government and other
stakeholders, share data and experiences, and stand up, stand out
and become effective advocates on their own behalf. Visit
globalgenes.org to get involved today.
About Horizon Therapeutics plc Horizon is focused on
researching, developing and commercializing medicines that address
critical needs for people impacted by rare and rheumatic diseases.
Our pipeline is purposeful: we apply scientific expertise and
courage to bring clinically meaningful therapies to patients. We
believe science and compassion must work together to transform
lives. For more information on how we go to incredible lengths to
impact lives, please visit www.horizontherapeutics.com and follow
us on Twitter, LinkedIn, Instagram and Facebook.
About #RAREis™ In February of 2017, Horizon launched the
#RAREis program aimed at elevating the voices, faces and
experiences of people living with rare diseases, as well as
highlight programs and resources for the rare disease community.
The program is anchored by an Instagram page and website that
showcases photos and stories of people touched by rare disease and
captures elements of their patient, caregiver or advocate
experience. To learn more, visit the #RAREis Instagram page and
visit the website at www.RAREisCommunity.com.
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version on businesswire.com: https://www.businesswire.com/news/home/20201113005107/en/
U.S. Media Contact: Michelle Rivas Senior Manager,
Product Communications media@horizontherapeutics.com
Ireland Media Contact: Gordon MRM Ray Gordon
ray@gordonmrm.ie
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