APDA remains steadfast in its mission to support those impacted
by Parkinson's disease as new law provides hope for accelerated
progress toward a cure.
New York ,
July 3,
2024 /PRNewswire-PRWeb/ -- The American
Parkinson Disease Association (APDA) is celebrating the President's
signing of the National Plan to End Parkinson's Act yesterday,
marking the enactment of the first-ever federal legislation
dedicated to curing and preventing Parkinson's disease (PD) and
ensuring quality care for those impacted by this chronic and
progressive neurologic disease.
"This marks a victory for the Parkinson's
disease community. But for now, the need for APDA's programs and
services remains as vital as ever and our commitment to improving
the lives of those affected by PD is unwavering." – Leslie A. Chambers, President & CEO,
APDA.
This is an historic moment for the one million people currently
living with PD in the United
States, the 90,000 receiving a new PD diagnosis each year,
and the larger PD community, including the many advocates who have
supported this legislation. APDA is proud to be counted among
them.
Originally introduced by Congress in 2022, The Dr. Emmanuel
Bilirakis and Honorable Jennifer Wexton National Plan to End
Parkinson's Act – in short known as the National Plan to End
Parkinson's Act – was passed by the House of Representatives on
December 14, 2023, and in turn by the
Senate on May 23, 2024. After passing
through both houses of Congress, it made its way to the President's
desk where it was signed into law yesterday.
Under the National Plan to End Parkinson's Act, the Secretary of
Health and Human Services will carry out the National Parkinson's
Project to prevent, diagnose, treat, and cure PD, including the
establishment of an Advisory Council comprised of federal agencies,
people with PD, care partners, researchers, clinicians, and other
non-federal experts. The Council will advise the Secretary on
PD-related issues as the National Parkinson's Project makes
progress by:
- Providing information to influence future federal funding
- Coordinating PD-related research and services across federal
agencies
- Promoting the development of safe and effective treatments
- Improving early diagnosis and patient care
- Assessing the multi-faceted impact of PD on patients, care
partners, and families
- Collaborating internationally
- And more
While this legislative victory marks a significant step forward,
APDA remains steadfast in its mission to provide the support,
education, and research that will help everyone impacted by
Parkinson's disease live life to the fullest. Through a nationwide
network of Chapters and Information & Referral Centers – as
well as extensive virtual programming and a robust resource library
– APDA helps people with PD and their loved ones build a community
and assemble the resources and support they need to make their
journey more positive. APDA connects people to the information that
helps them feel more in control; to the medical experts who can
help them manage their disease; and to the support and services
that can help them feel more empowered and less alone.
"This marks a victory for the Parkinson's disease community,"
states Leslie A. Chambers, President
& CEO, APDA. "We will continue to fight for a cure for
Parkinson's disease, and we are emboldened by the passing of the
National Plan to End Parkinson's Act. But for now, the need for
APDA's programs and services remains as vital as ever and our
commitment to improving the lives of those affected by PD is
unwavering. There's still a diagnosis every six minutes, and we are
here for every one of them."
To learn more about APDA programs, services, support, and PD
research, visit http://www.apdaparkinson.org, call 800-223-2732, or
email apda@apdaparkinson.org. Resources and support are available
in English, Spanish, and Chinese.
About the American Parkinson Disease Association:
The American Parkinson Disease Association (APDA) is a nationwide
grassroots network dedicated to fighting Parkinson's disease (PD)
and works tirelessly to assist the more than one million people
with PD in the United States live
life to the fullest in the face of this chronic, neurological
disorder. Founded in 1961, APDA has raised and invested more than
$282 million to provide outstanding
patient services and educational programs, elevate public awareness
about the disease, and support research designed to unlock the
mysteries of PD and end this disease. To join in the fight against
Parkinson's disease and to learn more about the support APDA
provides nationally through a network of Chapters and Information
& Referral (I&R) Centers, as well as a national Research
Program and Centers for Advanced Research, please visit us at
http://www.apdaparkinson.org.
Media Contact
Eloise Caggiano, American
Parkinson Disease Association, 718-737-8151,
ecaggiano@apdaparkinson.org, www.apdaparkinson.org
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SOURCE American Parkinson Disease Association